Hey Everyone,
It’s been a little while since we updated the website but we’re doing well.
Kai’s Chemotherapy round two ended almost two weeks ago and since then we’ve been in a holding pattern waiting for his bone marrow to recover and start working again.
Chemo targets fast dividing cells in the body and Leukemia cells are very fast dividing (as are hair cells which is why people lose their hair during chemo). One of the side affects of chemo is that it also kills the fast reproducing good cells that are generated in the bone marrow including the Red and White blood cells. The holding period between chemo treatments is a time when we are literally just waiting for Kai’s body to start producing Hemoglobin (Oxygen/energy), Platelets (Clotting), and ANC (immune system) cells.
This round Kai did have some rough days just after the chemo had completed. When his body hits the lowest blood counts and when he has zero immune system he can feel pretty crummy. He’s had three blood transfusions in the past two weeks to help keep his energy up and ability to clot. These are totally expected and part of the treatment.
Kai’s blood counts are showing some flickers of movement at the very low end so we’re hoping that within the next week or two he will start to round three. We’re also prepared for this to take quite a bit longer because with each round the body takes longer to recover.
The weather is awesome right now and we look forward to being able to get some day passes so we can take our little man out for a walk to get some fresh air. Between round one and two, we had 4 days in a row that we had a few hours that we could take Kai out side the hospital. There are lots of great places to walk including Queen Elizabeth Park to go watch the ducks, and around the Shawnessy area to see the 10-20 Million dollar homes!
Kai is getting a little bored as are we, but this is a good thing! He’s full of energy, is continuing to gain strength and has started to show quite a bit of interest in getting up on his knees. He’s able to stand and support his own weight and we have been encouraging him to crawl (although he shows very little interest in that!). He’s also gaining weight and is nearly back to his initial weight that he was when we were admitted in December. An uneventful past couple of weeks is good because there is nothing going on at the moment that requires medical attention!!!
Everyday we are able to unhook Kai from his lines and give him some freedom to play around in his crib or floor mat. We have also started to unhook him from his continuous feeding tube for 6 hours a day to encourage his appetite, and it’s working 🙂
The Canucks and the player charities donate a lot to the families staying at the Ronald McDonald house and often there are lots of tickets available to us. There have now been 3 separate occasions with 10 pairs of Canucks hockey tickets available to families. We have won each time although we had to give our tickets away to another family the first time as Kai was just admitted. Alicia and I went to one game in January when Lucy (Alicia’s mom) was here and able to watch Kai. Last week we won Canucks hockey tickets for the 3rd time and Alicia was able to go to the game with her cousin Alexander. They had a great time and the Canucks won 3-2 against Minnesota!
I was able to get out as well with friends a couple of times in past weeks as well which was awesome. We’re hanging in there, but most importantly our little guy is doing very well, is happy, and recovering physically – we couldn’t be more happy with the progress.
I think I’ll leave it there for now!
We love hearing from everyone in the comments so please feel free to drop a message anytime 🙂
Pingback: can you drink alcohol with augmentin
Pingback: baclofen side effects anxiety
Pingback: celebrex and tylenol
Pingback: organic india ashwagandha
Pingback: is buspar a benzo
Pingback: or ibuprofen for arthritis
Pingback: celexa interactions
Pingback: amitriptyline dose for pain
Pingback: aripiprazole 5mg
Pingback: baby aspirin pregnancy
Pingback: allopurinol hypersensitivity syndrome
Pingback: effexor max dose
Pingback: alcohol and citalopram 10mg
Pingback: flexeril medication
Pingback: diclofenac sod dr 75 mg
Pingback: ddavp cryoprecipitate
Pingback: naltrexone vs contrave
Pingback: ezetimibe guidelines
Pingback: depakote for sleep
Pingback: flomax relief pom to p
Pingback: cozaar potassium
Pingback: diltiazem indications
Pingback: can you drink alcohol while taking augmentin
Pingback: can you take amoxicillin and ibuprofen together
Pingback: bactrim for bacterial vaginosis
Pingback: bactrim ds for sinus infections
Pingback: should cephalexin be taken with food
Pingback: ciprofloxacin vs ofloxacin
Pingback: gabapentin comedown
Pingback: how long does 30mg duloxetine stay in your system
Pingback: keflex smells like rotten eggs
Pingback: para que sirve la fluoxetine 10 mg
Pingback: uses for cymbalta
Pingback: is cephalexin safe for nursing dogs
Pingback: how to buy real viagra online
Pingback: escitalopram anticholinergic
Pingback: lexapro and weight
Pingback: zoloft and dextromethorphan
Pingback: flagyl test
Pingback: rybelsus and constipation
Pingback: first dose of semaglutide
Pingback: new diabetes medications rybelsus
Pingback: furosemide salicylate
Pingback: lisinopril wirkeintritt
Pingback: glyburide-metformin oral
Pingback: nolvadex solution
Pingback: valacyclovir spc
Pingback: printable coupons for lyrica
Pingback: metronidazole tonsillitis
Pingback: gabapentin recreation
Pingback: bactrim geriatrics
Pingback: liquid tadalafil research chemical
Pingback: farmacia genericos comprar cialis generico online tadalafil precio
Pingback: difference between sildenafil tadalafil and vardenafil
Pingback: cialis omline
Pingback: viagra generic germany
Pingback: cheap rx sildenafil
Pingback: cheap viagra pills for sale
Pingback: generic viagra 100mg india
Pingback: where can i get over the counter viagra
We are very happy for Kai this is the beginning of a whole new life for all of you. Here’s to only good things coming your way from now on. Love and Hugs, Barb, Wayne, Cheryl & Chloe. oxoxox
Hoping I get through as I had problems earlier.
We send love and strength to Kai and hope he is still in superman mode. And hugs and love to the parents too.
Xo. Alison and family.
Hi Alison, thanks for leaving us a message and passing along some hugs for Kai!
Hi Carson and Alicia …Janna’s dad here…I’ve thought of Kai and you guys lots over the past couple months.. Janna has kept me posted on Kai’s battle…so good to hear positive things for him… You are such an anchor for him and each other…hope to hear continued progress for the lil guy….before you know it you’ll all be back on the island… Regards Norm
Hi Norm,
Thanks for the message! Alicia and I are definitely getting a lot of strength from one another, as well as our incredible friends Janna, Kyle, and Scotland! Kai is being such a little trooper through all of this, I am constantly blown away by his ability to recover and adapt to all the changes he’s facing.
Take care,
Carson
Please make sure to give SUPERMAN KAI a BIG HUG for me. 🙂 Thank you for the update, what a great idea to create a wonderful blog for Kai.
I am glad that you two were able to get out.
I also enjoy the pictures, makes me smile.
Thanks again for sharing your journey, we love you three very much and are thinking of you guys every day.
Love – Yuee, Bryan, Adera and (chub chub aka Zoe) 🙂
What a fighter Kai is – and has been from day one. We are so incredibly proud of your beautiful son, and there aren’t enough words to tell you how happy we are knowing of the positive progress he continues to make. He could not ask for two stronger, more brave, and loving parents. Thank you for sharing your journey with everyone here. We love you guys! “Go Kai” 😉 Scotland, Janna and Kyle
Thank you for the update, Carson! So so so glad Kai is doing well 🙂 What a champ! Great to hear both you and Alicia have been able to get out a bit more… lucky for us here in BC, the sun has been shining! 🙂 Keep the updates coming, we love to hear from you guys. Miss you! Love and hugs for Kai! <3
We think of you daily and keep you in our prayers. It was so good to see pictures of little Kai outside and hope it will happen again soon. Much love to you all. Hugs and kisses for Kai.
Thanks for the update. Sending positive vibrations to your little guy.
Keep the positive vibrations coming Chris! And win us some games this week please!
Glad to hear all the positive news think of you often , give Kai a BIG hug for us and look forward to hearing from you soon.
I will be happy to squeeze our little guy for you guys! So glad you are following Kai’s progress! All the support means so much to us! 🙂
Thank you for the update of the little fella. We are sending positive thoughts and lots of hugs and kisses to you all from the desert.
Thanks for all the support Tina and for your comments on the site! All of the virtual hugs and kisses are definitely making their way to our little trooper!